EJbio

Hi, everybody, and welcome to my website!

My mommy and daddy will do most of the talking while I grow and get strong and learn to breathe and eat. I already have the pooping down pat.

I have 22q11.2 Deletion Syndrome, which is known by a lot of other names, but we’re trying to refer to my diagnosis by that name or twenty-two-Q for short.

My parents call me “brave” and “strong” all the time, but I just do my thing while hanging out in the NICU at Cincinnati Children’s Hospital. I’m laid back, which is why I think my daddy loves my Just Chillin’ outfit so much.

So, that’s what I’m going to do from here on out–just chill–while mommy and daddy tell you all about their adventures in parenthood.

One response to this post.

  1. Posted by Jacci H on November 15, 2011 at 12:55 pm

    praying daily for you all..

    Praying for you little EJ. Everyday…you face some pretty awesome parents…

    Love
    jacci

    Reply

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